Some time ago a young girl came to the OPD with the lower part of her face covered. Well inside the examination room she disclosed an enormous enlargement of the tongue due to a hemangioma – a basically benign vascular tumor – which had been growing slowly for years.
How she had been able to feed herself and breathe at night when asleep remains a mystery. When asked why it took her so long time before coming to the hospital, the answer was - as always - due to lack of money.
She was admitted and scheduled for surgery. The longstanding pressure from the tumor had destroyed all teeth in the lower jaw and deformed the jaw as well. After removing almost all of the tongue together with the tumor, the deformed jaw stood widely open. A bilateral resection (removal of a part of the jaw on both sides) had to be done before the mouth could be closed. The bone ends were held in place with an external fixation device made of wires from a bicycle wheel hold together with plaster of Paris.
After the surgery she didn’t complain although she suffered a lot of pain. She was extremely brave – and clever too! She couldn’t talk due to lack of a proper tongue, so when asked about her age she showed by counting her fingers one by one until the last finger. “So you are 10 years” we asked? She shook her head vigorously and grasped her big toe “11 years!”
The lower lip had to be kept up with tape for a while before she gained muscular control.
She never had the chance to attend school. During admission time she was taught her how to knit among other things.
After three months she returned to have the external fixation device removed. She looked tired and miserable. It turned out that she had walked 11 hours by foot to reach the hospital!
After removing the device we gave her 50 birr – less than 5 $ - for the bus ticket to Chanka. From there it was “only” four hours walk to reach home.
Slowly she regained the ability to talk.
VIDEO 2 ← click for video
My heart still aches whenever I think of her – so poor but so brave.
The last three years we have been without regular financial support to run the hospital. Previously we received a yearly grant which made up 25% of the budget. But that grant was withdrawn as the donor agency decided not to support curative health care anymore. Easy to make decisions far away from reality, without having to face the dire consequences of decisions made. Had the responsible persons met this patient face to face I wonder if they had perseverated.
Thanks to the Lord we still receive 200 000 birr (18 000 $) every year from the german mission society ELM, earmarked for the poor fund - as well as donations from individuals. Otherwise we would not have been able to help that girl by giving free treatment.